I’m not sure whether you were aware but yesterday was Autism Awareness Day. I have a wonderful daughter with Autism and have a few friends who also have been diagnosed later in life.
Here’s a short summary of what it means to have Autism or be Neuro Diverse (ND). There is a wide spectrum of need and so there will be some ND’s who function on a day to day basis, whom you wouldn’t know are struggling to some who are non-verbal and everything in between.
Everyone’s brains are wired differently, someone with Autism has some connections missing or rerouted. Often those without Autism are referred to as Neuro-typical (NT), this helps as we are not calling Autism a disability but instead a difference in brain chemistry, or Neuro Diversity. ND’s are often among the most intelligent people in the world. Think of Steve Jobs, Bill Gates, Temple Grandin, Emily Dickerson and Albert Einstein to name just a few!
For our family having a child with Autism has enriched us. As is common for girls and women with Autism it has been a battle to get a diagnosis and an EHCP (I’m sure I’ll blog about our journey at some point!). But we know the fight was worth it as our daughter is now in a school that will cater to her needs and give her an education tailored to her. It was a shock to hear certain secondary schools in the area admit to not wanting to take her with her needs. As a society we need to do better.
There’s so much I could say about those with Autism and my admiration for them. To know how much they have to cope with on a daily basis to fit in with us NT’s. Wouldn’t it be interesting if instead of them fighting so hard to fit in with us, we worked harder to make life easier for ND’s.
I’d love to hear about your experience with Autism and answer any questions you may have.
Hi Rachel,
Hope you and your lovely family are all well.
Thanks so much for this blog post. My son asli has autism and, as we approach secondary I’m thinking a lot about an EHCP, his future etc.
Would love to hear about your EHCP journey, and also how you dealt with your daughter’s diagnosis as a Christian. What do you think her future looks like?
Much love to you!
Jo Willis (Prendergast!) Xx
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Great to hear from you Jo! Happy to share it with you. I’ll message you!
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Hi Rachel,
I love your post, one of Maisie’s best friends aged 17 from Leaf has recently been diagnosed with Autism. She is mega talented and throws herself into all that she enjoys. It’s been v difficult as you say for her parents to get a diagnosis. She’s started baking cakes and running her own business (really randomly from being on the stage, as she’s a v talented performer). She is beautiful and amazing but struggles in so many ways with friendship s etc… Its been interesting yet quite painful to watch her journey. Your lovely Milly will equally do well for sure, as you embrace her individuality and tap into her passions etc……and plus you have God on Yr side!! You and Sean are the perfect people to be her parents. x
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Thanks Catherine! I’m sure Maisie’s friend will find it easier having a diagnosis. Helps to understand how your brain works.
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